Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

https://simondelfavero.com

Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺

Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own

Katter, makt, odling, läsning, trams och oanständigheter. Skriver dåliga dikter om funkisliv och växter. Hatar oombedda råd. https://detsvartahalet.wordpress.c

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

Explainer video production: https://clausernst.com/en/ Moderate Long Covid since "mild" SARS-CoV-2 infection in Jan. 2021

My interests inc health, welfare & disability policy, media, hospice/palliative care, the environment & animal welfare. Happy to have left the other place :)

Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info

🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋smash the motherfucking white supremacist patriarchy on the right AND the left🍋

NZ museums and heritage aficionado, shoe fancier, curator baiter, demure chocoholic, and all-round-caffeine fiend. Personal views; Not those of my employer.

ME-dically gaslit for 10yrs.