ME/CFS Science @mecfsscience.org · 30/05/20256) The report also notes that children with PAIS were sometimes misdiagnosed with autism spectrum disorder (ASS). Respondents reported this even though the survey did not explicitly ask about it. 130
ME/CFS Science @mecfsscience.org · 30/05/20257) You can read the full report and summary on the website of the ME/CVS Vereniging, the patient association that authored it. Both are in Dutch. me-cvsvereniging.nl/... There's also an article about it by the public broadcast NOS: nos.nl/artikel/25692...me-cvsvereniging.nl2025: Vaak drang bij kinderen met PAIS | ME/cvs VerenigingTwee van de drie kinderen met een PAIS krijgt te maken met drang en/of dwang. We onderzochten dit in 2025, hier vind je het rapport 140
ME/CFS Science @mecfsscience.org · 30/05/20258) This is a sad report to read. It reminds me of Derek Pheby's case, a brilliant ME/CFS researcher who sadly passed away in 2022. His son has ME/CFS and their family was threatened with care proceedings: "The threat to break up our family was real." www.s4me.info/thread... 060
