iiinova — where your digital self keeps evolving

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ME/CFS Science @mecfsscience.org · 25/04/2025

4) - trying to maintain friendships when you are isolated and have been out of all social events for a long time. - The loneliness, not only because symptoms prevent you to see other people but also because they make your life totally different from others.

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ME/CFS Science @mecfsscience.org · 25/04/2025

5) Healthy people are like superhumans compared to an ME/CFS patient because they can do so much more. Normal identities and examples to follow do not apply. As one participant said: "The way that people have shown you to be an adult is inaccessible."

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ME/CFS Science @mecfsscience.org · 25/04/2025

6) I think this shows why patient groups and a having a community with other ME/CFS patients is really important. And why it is important to diagnose patients with ME/CFS even if there are very few treatment options.

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