iiinova — where your digital self keeps evolving

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Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 22/04/2025

“Transformative data platform” We’ll say it up front: this looks like nothing less than a huge public money transfer to Palantir (or Musk) to build a health surveillance system to use AI to monitor all Americans.

The idea of the platform is that the existing data resources are often fragmented and difficult to obtain. The NIH itself will often pay multiple times for the same data resource, even data resources that are within the federal government are difficult to obtain, and used by researchers.

So what we’re proposing is a transformative real world data initiative, which aims to provide a robust and secure computational data platform for chronic disease and autism research.

This data platform that will be unveiled and used for the autism initiative, I mentioned earlier, will be will also be available for other research programs within the NIH, on chronic disease and other topics.

The platform will facilitate collaboration across the department of health and human services and federal government more

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Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 22/04/2025

This appears to be possible in part due to the Trump effort to clean out and consolidate HHS and NIH IT systems at the top for control by political appointees not scientists.

altnih4science.substack.com

The NIH firing plan is really a radical institute merger and an authoritarian takeover

this is an Orbanization of US science: a move to exert political control over discovery, which will kill the US medical research industry and damage cancer cures. The plan must be stopped. We can act.

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Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 22/04/2025

Bhattacharya: It will have claims data from Medicare and Medicaid, electronic medical records, private sector insurance claims data… This is a privacy NIGHTMARE. @eileenguo.bsky.social @carlbergstrom.com

The platform will facilitate collaboration across the department of health and human services and federal government more broadly to establish comprehensive longitudinal health data sets with broad coverage in the U.S. population.

This will include claims data for Medicare, Medicaid. We are working on a memorandum of understanding with CMS to establish broader data use agreements within the NIH for that purpose.

It’ll include electronic health record data, and from the private sector, and it’ll include other other claims claims records.

It’ll include existing data resources such as the genetics data that the NIH has as well as toxicology data and environmental exposure data from across the government, and private resources, private industry.

Many leaders in the data science space have contributed to this strategy from DPCPSI offices and programs and across the ICS. And so this platform will feature the cutting edge knowledge that the NIH already has.

If you can look in this figure, you can see that the platform will integrate and link data from real world sources, such as pharmacy chains, so that you have medication records, health organizations, like the– including the

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