iiinova — where your digital self keeps evolving

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Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 22/04/2025

Today Trump’s NIH Director Bhattacharya announced a “research” initiative to study the “causes of autism.” It looks like it’s a surveillance initiative, to be frank. A few notes. 1/3

Alexander Tin@alexander-a-tin.bsky.social

We're learning more about NIH's plans for Secy Kennedy's new autism studies NIH Director Bhattacharya says they're amassing a swath of confidential medical data to link together for first time, ranging from broader access to CMS records to smartwatch data www.cbsnews.com/news/rfk-jr-...

cbsnews.com

RFK Jr.'s autism study to amass medical records of many Americans

The autism study is planning to link confidential data "with broad coverage in the U.S. population" in one place for the first time.

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The Ghost Of Sarra Copia Sullam @sarracopia.bsky.social · 22/04/2025

I'm not going to be on any kind of "database." I'm not a fucking disease vector. I have a right to privacy.

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Julia Dilliard💙🌊🐴🇺🇦#Resist. 🚫maga. DM's are blocked. @juliadilliard.bsky.social · 22/04/2025

So much for HIPPAA. www.cdc.gov/phlp/php/res...

cdc.gov

Health Insurance Portability and Accountability Act of 1996 (HIPAA)

To increase knowledge of HIPAA, including covered entities, the HIPAA security rule, and more.

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Laura McNeilly @iamshibainunut.bsky.social · 22/04/2025

Aktion T4?? Surveillance on what the regime considers disabled or not valuable to society/oligarchy??? This seems very dangerous.

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Loïc Gbd @loicgbd.bsky.social · 22/04/2025

After all the outrage about the so-called "social credit score" in China, the US invents an institutionalized "medical credit score" at the federal level.

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adamolenn.bsky.social @adamolenn.bsky.social · 22/04/2025

To be frank? More like “to be Anne Frank.”

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Tim Lowe @timlow3.bsky.social · 22/04/2025

bsky.app/profile/altn...

Alt NIH Bluesky 🧪@altnih4science.bsky.social

“Transformative data platform” We’ll say it up front: this looks like nothing less than a huge public money transfer to Palantir (or Musk) to build a health surveillance system to use AI to monitor all Americans.

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jlseig.bsky.social @jlseig.bsky.social · 22/04/2025

No!

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lhbari 🌻🌴 @lhbari.bsky.social · 22/04/2025

I’m sure DOGE has already gathered all the data.

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🐈‍⬛ Emmaline, Segrentarri of Snakkies & 👵🏼Jean, her human @jeanchimera.bsky.social · 22/04/2025

Pardon my paranoia, but my mind goes to, this leads to autistic, adhd, otherwise disabled and/or chronically ill, mentally ill (with LGBTQI being redefined) all being shipped off to Kennedy's "Wellness Camps."

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Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 22/04/2025

The idea of the platform is that the existing data resources are often fragmented and difficult to obtain. The NIH itself will often pay multiple times for the same data resource, even data resources that are within the federal government are difficult to obtain, and used by researchers.

So what we’re proposing is a transformative real world data initiative, which aims to provide a robust and secure computational data platform for chronic disease and autism research.

This data platform that will be unveiled and used for the autism initiative, I mentioned earlier, will be will also be available for other research programs within the NIH, on chronic disease and other topics.

The platform will facilitate collaboration across the department of health and human services and federal government more

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callie2.bsky.social @callie2.bsky.social · 22/04/2025

The NIH has been compromised by DOGE Gamers and RFK Jr. campaign operatives. It has become its own partisan war room against its very mission “to exemplify and promote the highest level of scientific integrity, public accountability, and social responsibility in the conduct of science.”

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